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"Confetti Skin, Beauty Within" is our blog about ichthyosis and its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2".

Read more about us and this blog...

Here's our summary of our best and most important posts of 2012.

Honey and Healing?

Let’s talk about honey!

There’s an awful lot of hype on the internet. Every day, I see an article or two posted by some well-meaning soul on Facebook, or sometimes a sidebar ad on a news article from someone trying to make a profit on the latest fad. Magic water. Coconut oil. Magic ear […]

What I learned at the FIRST Patient Support Forum in Dallas

I think I’m just about recovered from my weekend jaunt to Dallas. (If you haven’t done so already, check out the transcript of my liveblog of the FIRST Dallas regional conference.)

But rather than just leave you, faithful readers, to sift through my stream-of-consciousness and typo-laden liveblog, I thought I’d write here about things that […]