Comments for Confetti Skin, Beauty Within http://confettiskin.com/wp Navigating life with ichthyosis Wed, 08 Apr 2015 18:08:00 +0000 hourly 1 http://wordpress.org/?v=3.9.3 Comment on Free Aquaphor for patients with ichthyosis from Beiersdorf by Marybeth http://confettiskin.com/wp/2012/09/25/beiersdorf-free-aquaphor-program/#comment-1230880 Wed, 08 Apr 2015 18:08:00 +0000 http://confettiskin.com/wp/?p=43#comment-1230880 Called Biersdorf to inquire about sample size tubes, which do exist, but are only available to doctors and dermatologists. Was very disappointed to find that Biersdorf has done no clinical trials on the use of Aquaphor to heal tattoos. We are a business that has exclusively recommended Aquaphor to our clients and are believers and users of the product as well. I use Eucerin ALL THE TIME for my dry skin, too. Being that the FDA has not allowed Biersdorf to state that the product can be used to heal tattoos, because they are considered a puncture wound. A whole section of the tattoo industry recommends this product… you’d think they’d jump on this boat. Disappointed to find that although the customer service representative I spoke with stated that they produce the size that we are looking for that they are not available wholesale or retail and only given to medical professionals for free sampling. Odd, you’d think that if someone had something you made and wanted to pay for it you’d sell it to them instead of giving it away, no?

Either way, do love Aquaphor, was really disappointed in the response that I received from the customer service rep on the phone and will likely keep looking to see what I can find to provide our customers that is a cost effective solution for our business.

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Comment on Welcome to our blog about ichthyosis by Bcascade http://confettiskin.com/wp/2012/09/02/welcome-to-our-blog/#comment-1228631 Sun, 05 Apr 2015 11:58:21 +0000 http://confettiskin.com/wp/?p=6#comment-1228631 I will be following this blog from now on. My Ichthyosis is a different type but sure enough the social trauma is pretty much the same. For the first part of my life having Ichtyosis, I was having a hard time coping. I was told to look for a moisturizer several times to at least make my skin appear better and smoother. It was a long journey towards getting what I want. In fact, the quest is continuous at this point of my life for a cure that makes my life comfortable.

Today, I am using SR lotion today and I am hamaze with the effect. It lessen the dryness and my skin has improved. If this alone made me happy, how much more if the complete cure arrives?

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Comment on Free Aquaphor for patients with ichthyosis from Beiersdorf by Janet http://confettiskin.com/wp/2012/09/25/beiersdorf-free-aquaphor-program/#comment-1223430 Sun, 29 Mar 2015 15:18:29 +0000 http://confettiskin.com/wp/?p=43#comment-1223430 just wondering if this letter has to be from a dermatologist or can it be from our pediatrician? I have tried three times with our pediatrician and still can’t get it. We have three in our I mediated family and 4more in extended family. Thanks

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Comment on Free Aquaphor for patients with ichthyosis from Beiersdorf by gene yates http://confettiskin.com/wp/2012/09/25/beiersdorf-free-aquaphor-program/#comment-1212632 Thu, 19 Mar 2015 16:58:49 +0000 http://confettiskin.com/wp/?p=43#comment-1212632 Just wanted to tell beiersdorf and first ichthyosis for giving me the information on getting me and 2 of my four kids with ichthyosis vulgaris the creams we so much needed.it is hard times for us I got injured at work and have had a broke back and now need surjuy on neck so it’s winter time and you can imagine how bad we need this or any kind of cream to help from cracking and very dry flaking skin.it only took them(beiersdorf) about 4 days SUPPER FAST to get my cream from the time I applied.again thanks to all my friends of ichthyosis and first for parents and adults and a special thanks to melody and others for helping me.dry skin is not only bad but people forget how it leads to depression self confidence.especially being picked on or talked about because of your conditions.and most of the time it leaves SCARS.please if you have time help spread the word about ichthyosis. And other rare skin diseases.thanks again gene yate and family

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Comment on ARCI in Africa: Meet Dakura, Kweku and Amotalé by carlos Rodriguez http://confettiskin.com/wp/2014/01/13/arci-in-africa-meet-dakura-kweku-and-amotale/#comment-1207011 Sat, 14 Mar 2015 13:10:14 +0000 http://confettiskin.com/wp/?p=26878#comment-1207011 Michelle has been accused of taking the money intended for this family

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Comment on ARCI in Africa: Meet Dakura, Kweku and Amotalé by carlos Rodriguez http://confettiskin.com/wp/2014/01/13/arci-in-africa-meet-dakura-kweku-and-amotale/#comment-1207010 Sat, 14 Mar 2015 13:08:11 +0000 http://confettiskin.com/wp/?p=26878#comment-1207010 Philanthropist arrested for diverting funds meant for treating children with skin disease in Jirapa

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Comment on Daily Life With Ichthyosis: Rachel’s Cream Routine by Molly http://confettiskin.com/wp/2012/10/05/daily-life-with-ichthyosis-rachels-cream-routine/#comment-1192168 Thu, 26 Feb 2015 14:54:16 +0000 http://confettiskin.com/wp/?p=37#comment-1192168 I have never met anyone else with ichthyosis, so when I found this website it was like I finally landed on the Island of Misfit Toys! Other people I know have “dry skin” but we all know ichthyosis goes WAY beyond that. I’m most ashamed of my hands; they were never soft and pretty, and they never will be. I don’t own any rings and rarely paint my nails because I don’t like attention drawn to them.
My winter skin routine is as such: Aveeno immediately after a shower. Not the generic, either, it has to be the real expensive deal. Then every other day I top that with petroleum jelly from Dollar Tree.
Recently I started using Amlactin, the kind that has the acid in it to exfoliate. It’s wonderful! I’ve been able to skip the petroleum jelly totally. But it costs a fortune for a small amount. I usually have a humidifier running during the winter, and that helps my skin, hair, sinuses, and the plants enjoy it too.
Summers, as we all know, are easy. Any lotion will usually do the job, and it can sometimes only be applied every other day.
I am jealous of people who don’t have this condition. Some days I feel like a slave to my skin. I can never “just hop in the shower real quick.” It always is a process. I have to make sure I have a bottle of good moisturizer with me everywhere I go. If I am somewhere where I have to shower and don’t have any lotion then I am in excruciating pain all over my body until I can get home and do it right. I have dropped enough money to support a small country trying to find products who actually deliver what they promise. I roll my eyes every time I see a commercial on TV for someone with “dry itchy skin.” “Aw that’s cute,” I think to myself, “they have dry skin.”

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Comment on ARCI in Africa: Meet Dakura, Kweku and Amotalé by Apostle Mary Nabila Ales http://confettiskin.com/wp/2014/01/13/arci-in-africa-meet-dakura-kweku-and-amotale/#comment-1154623 Sun, 25 Jan 2015 05:29:15 +0000 http://confettiskin.com/wp/?p=26878#comment-1154623 These children have Generational Curse/Ancestral Problem. The ONLY solution is doing the Right Spiritual Practice. I will like to Go to Ghana and train them on the Right Spiritual Practice to do. Please how can I reach Michelle? Does anyone has her contact no, or email? My number in case anyone has her d contact info….832 560 4293. Thanks so much for sharing this post. May God heal these children in Jesus name.

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Comment on A Dremel First-timer Shares Her Story by Zach http://confettiskin.com/wp/2013/08/16/a-dremel-first-timer-shares-her-story/#comment-1148728 Wed, 21 Jan 2015 01:10:59 +0000 http://confettiskin.com/wp/?p=1990#comment-1148728 I have this same thing and my family for six generations have been managing this EHK with long warm bathes with soaps where we soak about an hour and use a pumice stone or coarse brush to scrub each hand and foot for about an 10 minutes. Then we apply a cream like yours but with a skun shredder property, it’s a hybrid mix the pharmacy mixes up for us and it works well. And each time thereafter, maintenance is much easier and bathes less lengthy. Let me know if you have questions, happy to chat.

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Comment on Ichthyosis and a typical day for me (Rachel) by Annette http://confettiskin.com/wp/2012/09/02/ichthyosis-and-a-typical-day-for-me-rachel/#comment-1145852 Sun, 18 Jan 2015 09:43:17 +0000 http://confettiskin.com/wp/?p=9#comment-1145852 Hello webmaster do you need unlimited articles for your page
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