About two weeks ago, as I was about to leave my office, I took a quick glance at Reddit and saw that someone had posted some pictures of a person with lamellar icthyosis, a form of autosomal recessive congenital ichthyosis (ARCI), to the Reddit forum called “WTF”. Since those pictures have been posted, they’ve been [...]
Today, our friend Jeffrey “Kanga” Gridley shares his story. He has lamellar ichthyosis, a form of autosomal recessive congenital ichthyosis (ARCI) and lives in Brisbane, Australia. In addition to his Red Cross work, he is also an avid mountain climber and is currently training to climb Mt. McKinley sometime next year. He aspires to climb [...]
Today we are pleased to present a guest post from Kyriaki, a friend from Down Under who we met online. What is it with articulate Australians advocating about ichthyosis online?
I grew up with people judging me for my looks, especially in summer. Not just when I was older and judged by my peers, [...]
Most rare types of ichthyosis are recessive. Recessive genes are genes that requires two copies, one from each parent, in order to make them show up. A person with only one copy of a recessive gene is called a carrier, and would have the same appearance as someone with two copies of the dominant version [...]
La última semana, nos enteramos de algunas noticias acerca de ictiosis en un pueblo rural y montaña en México, Soledad Atzompa. Hay allí un increíble número de personas que se ven afectadas por ictiosis. Abunda la información al respecto y todos casos similares. Se informa similar situación en la comunidad de Nogales, a unos 14km [...]
Last week, we learned about several news articles about icthyosis in a tiny, rural mountain village in Mexico, Soledad Atzompa. There are an astounding number of affected people in a very small region. There are also several other articles regarding the situacion and all have similar information. There is more coverage about the town of [...]
Two heartwarming stories about ichthyosis have been in the news recently. In the first, 5-year old Wyatt Daring had his cooling vest stolen, and, after both local and national media coverage, a cooling vest company is giving Wyatt a lifetime supply of vests. In the second, Komang, a 3-year old child in Indonesia, has received [...]