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Today we are pleased to present a guest post from Kyriaki, a friend from Down Under who we met online. What is it with articulate Australians advocating about ichthyosis online? —————————————- I grew up with people judging me for my looks, especially in summer. Not just when I was older and judged by my peers, [...] Most rare types of ichthyosis are recessive. Recessive genes are genes that requires two copies, one from each parent, in order to make them show up. A person with only one copy of a recessive gene is called a carrier, and would have the same appearance as someone with two copies of the dominant version [...] La última semana, nos enteramos de algunas noticias acerca de ictiosis en un pueblo rural y montaña en México, Soledad Atzompa. Hay allí un increíble número de personas que se ven afectadas por ictiosis. Abunda la información al respecto y todos casos similares. Se informa similar situación en la comunidad de Nogales, a unos 14km [...] Last week, we learned about several news articles about icthyosis in a tiny, rural mountain village in Mexico, Soledad Atzompa. There are an astounding number of affected people in a very small region. There are also several other articles regarding the situacion and all have similar information. There is more coverage about the town of [...] Two heartwarming stories about ichthyosis have been in the news recently. In the first, 5-year old Wyatt Daring had his cooling vest stolen, and, after both local and national media coverage, a cooling vest company is giving Wyatt a lifetime supply of vests. In the second, Komang, a 3-year old child in Indonesia, has received [...] |
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