Find Us On Facebook
Follow Us On Twitter
"Confetti Skin, Beauty Within" is our blog about ichthyosis and its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2".

Read more about us and this blog...

Here's our summary of our best and most important posts of 2012.

Let’s Talk, In All the Wrong Ways

We are excited to have SooAnn Roberts Pisano join us today! SooAnn is the mother of two boys with two different forms of epidermolysis bullosa and is an active voice in advocacy for those with disabilities.


We’re all guilty of doing it. There might be at least one occasion that stands […]

Esta semana con ictiosis: 10/26/2012

(This post is available in English here.)

Lo más destacado de la edición de esta semana es la historia de Soledad Atzompa, un pequeño pueblo de montaña en Veracruz, México, que tiene una enorme porción de la población afectada por la forma laminar de ARCI. Hemos escrito sobre como es posible esto en Inglés y […]

This Week in Ichthyosis — 10/26/12

(Puede leer esto aquí en español.)

The highlight of this week’s edition is the tale of Soledad Atzompa, a tiny mountain town in Veracruz, Mexico that has a huge portion of its population affected by the lamellar form of ARCI. We wrote about how that is possible in English and also in Spanish. In other […]