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"Confetti Skin, Beauty Within" is our blog about ichthyosis and its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2".

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Here's our summary of our best and most important posts of 2012.

Camp Wonder: Rolling With The Punches

Last week, Cookie and Monkey had a wonderful time at Camp Wonder. They got to see some old friends and make several new ones, and had a chance to do things they ordinarily wouldn’t, such as drive a speed boat! But more on that later. For now, I want to share a specific tale about [...]

Off to Camp Wonder, or The Trials of Travel with Skin Disorders

On Sunday, we shipped Cookie and Monkey off to Camp Wonder, a special camp for kids with rare and severe skin disorders. Both boys were really looking forward to camp this year, which will mark Cookie’s fourth year in a row attending, and Monkey’s second. But before we can talk about how awesome Camp Wonder [...]

Summer Camp at Camp Wonder June 23-28th

Joining us today is Christine Clakely, Executive Director of The Children’s Skin Disease Foundation (CSDF). Cookie has attended Camp Wonder for the past 3 years, and Monkey went for the first time last year. They have had a wonderful time and look forward to going back this summer. I would be happy to answer any [...]

This week in ichthyosis — 10/12/12

This week, we tackled the basics of skin anatomy and reviewed a fascinating research project on making ARCI (lamellar-type) mouse models. Camp Wonder is a week-long camp available to children with skin disorders aged 6-18 in Oakland, California. It is completely free to attend, as it is hosted by a marvelous charity called the Children’s [...]