While updating our blogroll links, I noticed that Megan’s blog has moved to a new address, and that I missed a letter she wrote about being a counselor at Camp Discovery.
Sometimes I think I use too many superlatives when talking about writing about ichthyosis, but I really think that Megan’s letter is a “must-read” [...]
Last week, Cookie and Monkey had a wonderful time at Camp Wonder. They got to see some old friends and make several new ones, and had a chance to do things they ordinarily wouldn’t, such as drive a speed boat! But more on that later. For now, I want to share a specific tale about [...]
Joining us today is Christine Clakely, Executive Director of The Children’s Skin Disease Foundation (CSDF). Cookie has attended Camp Wonder for the past 3 years, and Monkey went for the first time last year. They have had a wonderful time and look forward to going back this summer. I would be happy to answer any [...]
Today, Janine Mueller from the American Academy of Dermatology joins us to tell us about the summer camps offered to kids with ichthyosis, epidermolysis bullosa and several other skin conditions. Our son Cookie has gone to camp for the last 3 years, and Monkey joined him for the first time last year. They had the [...]