Last October, we wrote about media coverage of Soledad Atzompa, a tiny village in Mexico with an astounding number of cases of lamellar ichthyosis, a form of autosomal recessive congenital ichthyosis (ARCI). We further speculated that the village could be suffering from the “founder effect”, caused when an isolated population in a fairly small community [...]
Good news out of Michigan — there has been a settlement in the Justice Department’s lawsuit against a Golden Corral restaurant in Michigan that kicked out a family with three daughters who had a form of epidermolysis bullosa.
According to a report published this afternoon by the Detroit Free Press, when announcing the settlement, Barbara [...]
Malawi media is now reporting that the baby born last week affected with harlequin ichthyosis has died. (We wrote on Monday about the baby and the media coverage.) Although the news of the baby’s passing was just published today (Wednesday), the story says that the baby died over the weekend, shortly after being transferred to [...]
La última semana, nos enteramos de algunas noticias acerca de ictiosis en un pueblo rural y montaña en México, Soledad Atzompa. Hay allí un increíble número de personas que se ven afectadas por ictiosis. Abunda la información al respecto y todos casos similares. Se informa similar situación en la comunidad de Nogales, a unos 14km [...]
Last week, we learned about several news articles about icthyosis in a tiny, rural mountain village in Mexico, Soledad Atzompa. There are an astounding number of affected people in a very small region. There are also several other articles regarding the situacion and all have similar information. There is more coverage about the town of [...]
Going through our postal mail this week, we saw a copy of the September 2012 “Research Times” newsletter from FIRST, the Foundation for Ichthyosis and Related Skin Types. In addition to reporting on the grant to Dr. Amy Paller for her siRNA gold nanoparticle research, which we previously blogged about, the newsletter [...]
Earlier this week, FIRST, the Foundation for Ichthyosis and Related Skin Types, announced that it had made a $75,000 grant funding research into a potential ichthyosis treatment using a gold nanoparticle-laden ointment. We took a crack at explaining this science-heavy announcement in easily understood terms. We also posted about some ongoing ichthyosis-related studies seeking assistance.
We were thrilled to see today’s announcement by FIRST, the Foundation for Ichthyosis and Related Skin Types, that FIRST has made a major research grant to Dr. Amy Paller at Northwestern University in Chicago. Since 2006, FIRST has contributed over $1.4 million to ichthyosis research.
As part of the original purpose of our blog, we [...]