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"Confetti Skin, Beauty Within" is our blog about ichthyosis and its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2".

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Here's our summary of our best and most important posts of 2012.

Aquaphor combustion, fire safety and critical-thinking skills

By Rachel See, on June 5th, 2013

Monday’s guest post by Chandra Rogers about how her Aquaphor-laden clothes started smoldering (and could have caught on fire) got me thinking: Were there any other reported instances of Aquaphor catching on fire? After we published Chandra’s post, I did a quick Google search for “Aquaphor combustion” and saw a scientific study published about the [...]

June 5th, 2013 | Tags: , , , , , , , , , | Category: Science | 2 comments

Walking Attainment Delays in Children Affected With Ichthyosis

By Rachel See, on April 5th, 2013

Children affected with ichthyosis start walking later than unaffected children.

Based on responses collected from parents regarding 54 affected children, we are able to conclude that children affected with moderate to severe forms of ichthyosis start walking, on average, almost two months later than unaffected children.

Approximately 40% of the children affected [...]

April 5th, 2013 | Tags: , , , , , , | Category: Research, Science | 4 comments

Back to School: Skin Basics

By Jennifer See, on October 11th, 2012

Skin is the biggest organ in our body. It protects us from injury and invasion from bacteria and viruses, and protects us from losing body heat and water through evaporation. It regenerates itself about every 28 days, and faster in some areas and after an injury. If you stretched out your skin on a flat [...]

October 11th, 2012 | Category: Science | One comment

Ongoing Ichthyoisis Research Studies Seeking Participants: Gene Discovery, Hearing Loss, CD5789, and Psychological Effects studies

By Jennifer See, on October 2nd, 2012

We are currently aware of four separate research projects that are seeking people with ichthyosis to participate in their studies. These projects are Keith Choate’s Gene Discovery Project at Yale, Amy Paller’s Palmoplantar Keratoderma treatment with CD5789 study (sponsored by Galderma), the UK’s All Party Parliamentary Group on Skin survey, and the Harvard Hearing Loss [...]

October 2nd, 2012 | Tags: , , | Category: Research, Science | One comment