Find Us On Facebook
Follow Us On Twitter
"Confetti Skin, Beauty Within" is our blog about ichthyosis and its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2".

Read more about us and this blog...

Here's our summary of our best and most important posts of 2012.

Honey and Healing?

Let’s talk about honey!

There’s an awful lot of hype on the internet. Every day, I see an article or two posted by some well-meaning soul on Facebook, or sometimes a sidebar ad on a news article from someone trying to make a profit on the latest fad. Magic water. Coconut oil. Magic ear [...]

Retinoids: What are they?

Retinoids. You’ve heard of them, and maybe been prescribed them. You may have heard that some people say they are a wonder drug that made their ichthyosis go away, but others say scary, scary things about them.

We’ve previously written about sorting out the names of different retinoids and discussed how much one retinoid costs [...]

News from Italy: A clinical trial of tazarotene cream

I was excited to listen to Dr. Giovanna Zambruno’s presentation at the UNITI conference this past weekend in Bari, Italy. Dr. Zambruno is with the Istituto Dermopatico dell’Immacolata (IDI-IRCCS), Laboratory of Molecular and Cell Biology in Rome. The title of her presentation to UNITI was “New topical formulation of Tazarotene: clinical trial’s preliminary results” [...]

Aquaphor combustion, fire safety and critical-thinking skills

Monday’s guest post by Chandra Rogers about how her Aquaphor-laden clothes started smoldering (and could have caught on fire) got me thinking: Were there any other reported instances of Aquaphor catching on fire? After we published Chandra’s post, I did a quick Google search for “Aquaphor combustion” and saw a scientific study published about the [...]

Walking Attainment Delays in Children Affected With Ichthyosis

Children affected with ichthyosis start walking later than unaffected children.

Based on responses collected from parents regarding 54 affected children, we are able to conclude that children affected with moderate to severe forms of ichthyosis start walking, on average, almost two months later than unaffected children.

Approximately 40% of the children affected [...]

Water, water: Transepidermal Water Loss

Remember back when I wrote about how skin is supposed to work? One of the main jobs that skin does is to keep water inside our bodies.

Our bodies are about 60% water, and membranes isolate every cell into its own little world. The balance between inside and outside is maintained by a complex network [...]

Back to School: Skin Basics

Skin is the biggest organ in our body. It protects us from injury and invasion from bacteria and viruses, and protects us from losing body heat and water through evaporation. It regenerates itself about every 28 days, and faster in some areas and after an injury. If you stretched out your skin on a flat [...]

Ongoing Ichthyoisis Research Studies Seeking Participants: Gene Discovery, Hearing Loss, CD5789, and Psychological Effects studies

We are currently aware of four separate research projects that are seeking people with ichthyosis to participate in their studies. These projects are Keith Choate’s Gene Discovery Project at Yale, Amy Paller’s Palmoplantar Keratoderma treatment with CD5789 study (sponsored by Galderma), the UK’s All Party Parliamentary Group on Skin survey, and the Harvard Hearing Loss [...]