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"Confetti Skin, Beauty Within" is our blog about ichthyosis and its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2".

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Here's our summary of our best and most important posts of 2012.

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Back to School 2013

It’s that time again – school is coming! Our kids don’t start until September, but many districts start in mid to late August.

I got all our supply shopping done earlier this month and spent an afternoon helping the kids sharpen 120 pencils and take all the packaging and stickers and tags off of their [...]

Ichthyosis and School: Initiating a 504 Plan

Near the end of preschool, we contacted the school district about creating a 504 plan* for Cookie. Some districts have a specific district coordinator that handles special needs evaluation, while in other districts, the job falls to the school counselor. The process takes about 3 months to complete. Here’s what we asked for and went [...]