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"Confetti Skin, Beauty Within" is our blog about ichthyosis and its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2".

Read more about us and this blog...

Here's our summary of our best and most important posts of 2012.

Ichthyosis and School: Initiating a 504 Plan

Near the end of preschool, we contacted the school district about creating a 504 plan* for Cookie. Some districts have a specific district coordinator that handles special needs evaluation, while in other districts, the job falls to the school counselor. The process takes about 3 months to complete. Here’s what we asked for and went [...]