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"Confetti Skin, Beauty Within" is our blog about ichthyosis and its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2".

Read more about us and this blog...

Here's our summary of our best and most important posts of 2012.

Honey and Healing?

Let’s talk about honey!

There’s an awful lot of hype on the internet. Every day, I see an article or two posted by some well-meaning soul on Facebook, or sometimes a sidebar ad on a news article from someone trying to make a profit on the latest fad. Magic water. Coconut oil. Magic ear [...]

Hypnotherapy and Ichthyosis

ISG in the UK co-sponsored an “online clinic on skin conditions” that’s taking place this week. It’s still going on, and there are some worthwhile and interesting responses now, but Jennifer and I think that the forum was marred by the inclusion of a hypnotherapist on the panel of medical experts.

In one of the [...]

Ear Candling

People affected by ichthyosis often have problems in their ears.The hyperkeratosis, or fast-growing skin, is as much a problem in the ears as it is on any other body surface. But inside the ear canal, we also have to deal with ear wax, and the fast-growing skin can combine and create giant plugs of gunk [...]

The Trouble With Science

Let’s talk about wonder cures. We see them every day on Facebook and in well-meaning email forwards from our relatives and every time we seek out advice from Dr. Google.

Science has a pretty bad reputation in this country. Sometimes medical care is a matter of blindly trusting a doctor’s advice. And we know all-too-well [...]

“Black Hat” Facebook Community Building

One question I’ve seen from members of our little community in response to the Lucas Moura picture is, “Why would someone do that?” The answer, sadly, is money.

As of noon ET on Sunday, the picture has nearly 1.2 million “likes”, over 4,100 “shares” and almost 25,000 comments. And the underlying Facebook page currently has [...]