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"Confetti Skin, Beauty Within" is our blog about ichthyosis and its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2".

Read more about us and this blog...

Here's our summary of our best and most important posts of 2012.

Let’s Talk, In All the Wrong Ways

We are excited to have SooAnn Roberts Pisano join us today! SooAnn is the mother of two boys with two different forms of epidermolysis bullosa and is an active voice in advocacy for those with disabilities.


We’re all guilty of doing it. There might be at least one occasion that stands […]

Golden Corral Restaurant in Michigan Sued After Kicking Out Family With EB

Last week, on February 20, the Department of Justice filed a lawsuit against a Golden Corral restaurant near Detroit, Michigan. The complaint alleges that the restaurant discriminated against a family with three daughters who have epidermolysis bullosa.

According to the Department of Justice’s complaint, the mother, Danielle Duford, and her four daughters went to the […]