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"Confetti Skin, Beauty Within" is our blog about ichthyosis and its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2".

Read more about us and this blog...

Here's our summary of our best and most important posts of 2012.

Playground Trauma

So…. we are eight weeks into school. Three of my kids have teachers new to both the school and the district, so we had to go through the whole spiel back on Meet the Teacher night. The oldest one is finally at the point where he can more or less advocate for himself, especially with […]

Ichthyosis and School: Air Horn Reveille

School started yesterday. School, for us, starts at 7:40 in the morning. This creates a bit of a problem for our family, since we need to get all three boys bathed and out the door before daylight.

The summer sunshine makes things worse. Up until last week, it was still somewhat light after 9pm. All […]

Ichthyosis and School: Hawaii

When Cookie started kindergarten,* we ran into a problem that may families with ichthyosis have experienced — some of his classmates started picking on him because of his skin. Two kids from his class thought it would be funny to start sniffing Cookie’s neck as they walked down the hall, and then whisper to other […]

A Skin Cancer Scare

Cookie has had a little white scar thingy on his hip for several years. It wasn’t really remarkable, except that my kids almost never scar. He had probably bumped into a table or something long since forgotten. Several months ago, he pointed it out to me after his shower and said it was itching. It […]

Aquaphor: Waistband Killer

Our recent discussions about Aquaphor and laundry (and other problems with Aquaphor and laundry) got our friend Sarah thinking about some of her own laundry-related woes. Sarah’s son has a form of autosomal recessive congenital ichthyosis (ARCI).

And we’ve definitely noticed the problems Sarah writes about here! Thanks, Sarah, for being a guest poster!

Yesterday […]

Spontaneous Combustion of Aquaphor-Laden Laundry

Today our friend Chandra Rogers shares her tale of laundry woe. Chandra has a form of ARCI, and her laundry incident happened in 2005, but we think it’s important to share since so many of us use petroleum-based ointments and creams like Aquaphor, Vaseline and Hydrophor. Chandra’s story was originally reported in a 2005 edition […]

Megan vs. Doorknobs; Rachel vs. Glasses

Megan has started blogging and her first post, Me Against the World, and by World, I Mean Doorknobs, is an awesome piece of writing. Check it out if you haven’t seen it already. (I’ll wait. 🙂 )

I’ve blogged about my pickle jar fight but I haven’t really gone into more detail about my own […]

Satan Causes Ichthyosis?

We spent a lot of time in a hotel swimming pool in Washington DC this past weekend. Oddly, this particular pool had lifeguards.

Cookie, Kitty and Monkey arrived with me early Saturday morning, right after the pool opened. The lifeguard asked us to wait to go in while she tested the water’s chlorine level in […]

The Cherry Blossom Death March

A few days ago, Jennifer said to me, “I don’t know how to tell this story without making us look like idiots.” And we’ve been wrestling with that for almost a month now. I think the honest answer is really, “Yes, we were idiots.” And maybe part of blogging about life with ichthyosis is being […]

The Quirky Professor

What’s the quirkiest thing you’ve ever seen a teacher do?

This month, I began co-teaching a class at Georgetown, as an Adjunct Professor in their School of Continuing Education. It’s the first formal class I’ve taught, and part of me wonders how I’m doing. The students are, for the most part, very engaged, although a […]