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"Confetti Skin, Beauty Within" is our blog about ichthyosis and its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2".

Read more about us and this blog...

Here's our summary of our best and most important posts of 2012.

The Travails of Travel

We’ve had a bit of an extended family vacation, and one of the things that fell by the wayside has been our blog. But we’re back home now, with lots of blog fodder. (We arrived home at around midnight last night, and were greeted by our three lonely cats. And when Jennifer and I [...]

Off to Camp Wonder, or The Trials of Travel with Skin Disorders

On Sunday, we shipped Cookie and Monkey off to Camp Wonder, a special camp for kids with rare and severe skin disorders. Both boys were really looking forward to camp this year, which will mark Cookie’s fourth year in a row attending, and Monkey’s second. But before we can talk about how awesome Camp Wonder [...]

Drill, Baby, Drill: Why we bought a third Dremel on Father’s Day (or, Power Tools and Ichthyosis Care Revisted)

My feet did a good job of throwing a wrench into part of our weekend plans. We were planning on trying to do some tourist-y stuff in the DC area on Sunday, and I had vague aspirations to do better than our Cherry Blossom Death March a couple of months ago. But this time, we [...]

Daily Life With Ichthyosis: Better Living through Power Tools

By now, over 270,000 people have seen a picture of Rachel’s foot, thanks to our question and answer session on Reddit three weeks ago. Much less visible was this other photo back around Halloween night. If you compare the two photos, you might notice that the thickness of the skin appears very different between the [...]

Invited to Speak: The Storyteller

A year ago, I was asked to bring my children to a medical meeting to participate in grand rounds. It was…unfulfilling, shall we say?

Fast forward to January. In the course of starting this blog, we have met quite a few new families, and while I feel that I am pretty confident in answering general [...]

Pulling Back the (Transparent) Curtain

When we started this blog half a year ago, Jennifer and I initially thought that we would attempt to be “semi-anonymous” by not signing our last names to the blog. Almost 100 posts later, we have revisited that decision, and, for a lot of reasons, we have decided, starting now, to identify ourselves fully here. [...]

Surgery Concerns and Blogging

We’ve been quiet on the blog this week because on Tuesday morning, Jennifer took Cookie into the ER for some appendix-related pain. He’s doing fine now, but this afternoon we have another consultation with a surgeon to see if he’ll have go in for an appendectomy. (Cookie doesn’t have appendicitis yet, but rather has a [...]

Daily Life With Ichthyosis: Tanks for the Memories

“No one has ever asked me that question before,” said the apartment rental agent.

I was stuck looking for a new apartment in the DC area, and for the past week or so I have been taking a whirlwind tour of numerous apartment complexes and otherwise being baited-and-switched following up on Craigslist ads and other [...]

Welcome to our blog about ichthyosis

Welcome to our blog. We intend to write about the rare skin disorder ichthyosis and its effect on our lives.

Your lead bloggers are Jennifer and Rachel See. Rachel is a lawyer and grew up in a family full of doctors and nurses. Jennifer taught anatomy and physiology to nursing students at a community college, [...]