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"Confetti Skin, Beauty Within" is our blog about ichthyosis and its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2".

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Here's our summary of our best and most important posts of 2012.

Neglected and Unloved

I apologize for having vanished from our forum. Our life has gotten a bit crazy since the new year. Cookie picked up a bully early in the school year (not ichthyosis-related; this kid and his two hangers-on are generally obnoxious to everyone in the class, including the teachers.) Anyway, this has caused his natural tendency […]

Rachel’s Isotretinoin Log: Month 4

I’m starting my fourth month on isotretinoin (also known as Accutane and other names) and I’ve run into a bit of logistical problems. Thanks to a combination of expiring prescriptions and me leaving the refilled prescription at home before I left for the week, over the past two weeks I only took the medicine on […]

Rachel’s Isotretinoin Log: Month 2

I’ve been on isotretinoin (also known as Accutane and other names) since the end of October, so I’ve now had a little under two and a half months of experience on the medicine. And during our brief blog hiatus, several of our readers and friends wrote in to ask me how I was doing.

For […]

Happy New Year 2014 — We’re Back!

Hello, readers. Happy New Year from our family to you and yours!

Our family is doing well, even with the colder and drier weather. We have the same concerns as usual — dry, cracked feet, decreased mobility, the need for long showers while travelling. But by now, the annual Christmas trip to visit the […]

Isotretinoin and Wedding Rings (Rachel’s Isotretinion Log: Week 3)

I’ve been on isotretinoin (also known as Accutane and other names) for three weeks now, and I’m amazed at how quickly I’ve seen results.

But isotretinoin almost made me lose my wedding ring! About a week after starting on the medicine, I had full range-of-motion in my hands and was able to my fingers open […]

Rachel’s isotretinoin log: Week 1

I feel kind of miserable right now, but I’m not entirely how much I should be blaming isotretinoin, also known as Accutane and other names.

I’ve been taking 40 mg/day (0.6 mg/kg/day) since last Monday night, so it’s been one week since I’ve been on the drug.

My skin is starting to peel. My face […]

Playground Trauma

So…. we are eight weeks into school. Three of my kids have teachers new to both the school and the district, so we had to go through the whole spiel back on Meet the Teacher night. The oldest one is finally at the point where he can more or less advocate for himself, especially with […]

Thoughts on Starting Isotretinoin

On Monday, I visited my local dermatologist for the second time in a month, and received a prescription for a a low dose of isotretinoin (also known as Accutane and other names), an oral retinoid.

It’s taken me slightly over a year-and-a-half to get to this point. Way back when I gave him a bunch […]

Rachel’s Misdiagnosis Saga: Lamellar Ichthyosis

As a young child, I was diagnosed with congenital lamellar ichthyosis (now classified as a type of autosomal recessive congenital ichthyosis (ARCI)). I dutifully parroted that diagnosis to any adult who asked (and even helpfully spelled it out). When confronted with skepticism that I didn’t exactly match up with others who had lamellar ichthyosis, I […]

Ichthyosis and School: Air Horn Reveille

School started yesterday. School, for us, starts at 7:40 in the morning. This creates a bit of a problem for our family, since we need to get all three boys bathed and out the door before daylight.

The summer sunshine makes things worse. Up until last week, it was still somewhat light after 9pm. All […]