Welcome to May! This month is dedicated to raising awareness about ichthyosis. This looks to be one of the most active Ichthyosis Awareness Months ever! Here are the goings-on around town we’re aware of:
FIRST, the Foundation for Ichthyosis and Related Skin Types, is publishing member stories throughout the month of May. The first “personal insight into the lives of individuals and families touched by ichthyosis” is from Cynthia Bremmer, who writes about living with lamellar ichthyosis. (Several of the international groups have also started talking about this series!) Expect a new entry every Monday-Wednesday-Friday for the entire month! And we know that FIRST also has a bunch of fundraising and advocacy events scheduled for this month. (Hopefully we’ll see our friends getting some time in front of the TV cameras on Friday morning — stay tuned!)
Our friend Carly Findlay is also hosting an extensive series of guest posts on her blog, amplifying voices and faces through blogging. We, of course, are big believers in the power and reach of blogging, and we were happy to contribute to her series there. Carly also made an “It Gets Better” video, talking about ichthyosis and appearance.
We’re excited to see all of the activity for Ichthyosis Awareness Month. Let us know if we’ve missed anything!