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"Confetti Skin, Beauty Within" is our blog about ichthyosis and its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2".

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Here's our summary of our best and most important posts of 2012.

A Valentine Wish

Happy Valentine’s Day!

Today is one of those holidays that gets mixed reviews. For some, it is the most romantic day ever, full of flowers and chocolate and all things pink and red. For others, it’s a day to tell all their friends how much they are appreciated. And still others choose to ignore the holiday, calling it over-hyped and over-marketed and would rather get flowers and candy on any day that isn’t February 14th.

For me, while I tend to fall into that last category for myself (half-price chocolate on Feb 15th is my holiday!), I also think that the spirit of the holiday is what is important, not the retail aspect. Cards are read and tossed. Candy is eaten. Flowers wilt. But what remains is our relationships, and with it, our memories.

I wish for my children to be secure in themselves. I want them to love who they are, and to realize that their skin disorder is not what defines them. I hope that having the skin disorder makes them grow into confident, compassionate adults that can adapt to different situations with ease.  I hope that they learn to handle questions and stares gracefully, without becoming angry and resentful at innocent questions. And I hope that they learn that appearance isn’t the only quality that you should consider when making friends or seeking a relationship.

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