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"Confetti Skin, Beauty Within" is our blog about ichthyosis and its effect on our lives. Rachel and our three boys are affected with the form of ichthyosis called "icthyosis en confetti, type 2".

Read more about us and this blog...

Here's our summary of our best and most important posts of 2012.

Summer Camp for kids with Ichthyosis

Today, Janine Mueller from the American Academy of Dermatology joins us to tell us about the summer camps offered to kids with ichthyosis, epidermolysis bullosa and several other skin conditions.  Our son Cookie has gone to camp for the last 3 years, and Monkey joined him for the first time last year. They had the most amazing time, I will write more about their experiences separately, but if you have a child between 7 and 16, I strongly recommend that you consider summer camp.


This year the American Academy of Dermatology (AAD) is celebrating the 20th Anniversary of Camp Discovery with six weeks of Camp in five states; providing an amazing camp experience to approximately 380 children.

Under the expert care of dermatologists and nurses, Camp Discovery offers young people the opportunity to spend a week with other children who have similar skin conditions.  Activities include fishing and swimming, ropes courses, horseback riding, arts and craft and hanging out with friends, just to name a few.  Many of the counselors also have skin conditions and can provide support and advice.

There is no fee to attend. Full scholarships, including transportation, are provided by the AAD through generous donations from its members, outside organizations and individuals.  All campers must be referred by their dermatologist.

For more information about attending or volunteering please visit or contact Janine Mueller at 847/240-1737 or  2013 dates are listed below.


  • Little Pine, Crosslake, Minnesota – ages 10-14 – June 23-28

  • Camp Reflection, Carnation, Washington – ages 8-16 – June 24-28

  • Big Trout, Crosslake, Minnesota – ages 14-16 – July 7-12

  • Camp Horizon, Millville, Pennsylvania – ages 8-13 – August 10-17

  • Camp Dermadillo, Burton, Texas – ages 9-15, August 11-16

  • Camp Liberty, Hebron, Connecticut – ages 8-16, August 11-17

   Camp Discovery logo


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